Call for Donations

Millions of people suffer from it worldwide. Twice as many as those who suffer from multiple sclerosis. Anyone can get it. There is no cure. Why should we care? Because it could be you!

WHAT ABOUT ME? Inside the dramatic search for a cure to ME/CFS, is a feature documentary that tells the powerful story of a mother's motivation to cure her daughter of an illness that has no diagnosis and no cure, with no place to go she vows to find a cure herself, whilst her daughter becomes more sick and confined to a wheelchair. The story of what love can do, is powerfully weaved through the world of suffering with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

17 million people around the world suffer from this mystery illness. It destroys lives, leaving people bed-bound and racked with pain suffering with devastating memory loss and confusion, unable to tolerate even the smallest amount of light or noise, and to this point there has been no known cure, but now at last, it seems that scientists may have found the answer.

The Whittemore Peterson Institute founded by Annette Whittemore to find a cure for her daughter, welcomed Dr Judy Mikovitz to their ranks. A straight talking cancer specialist, outraged by the lack of attention the illness ME was getting, and convinced that it must be related to a virulent virus, made it her mission to discover more - she believes she has - with a newly discovered human retrovirus XMRV she holds responsible for ME. With so much at stake will XMRV be revealed to be the cause of the illness? Will governments concede this to be true? Can it be treated with anti- retroviral drugs like HIV/AIDS, will this illness be wiped off the planet? Has Dr Mikovitz found the cure?

Click here if you would like to make a contribution to the film. Every dollar counts, and with your help, we will reveal the truth.

Thank you so much. Double D Productions.

New Vimeo Group - The Start of an Online Community

We have spoken to you on facebook and twitter, on emails, even on the phone for some. NOW however, we want to see you! Not just in still photos but in your life.

We have set up a Vimeo group to upload your stories and experiences. We feel this will be a way of getting to know you more and a way for you to see and know each other! Let's start building the biggest forum of ME/CFS sufferers on the planet.

A minute or two, shot even from your phone, to upload on the link we have here. We want you in your location, just as you are. We look forward to meeting you!

Susan

New link and Update

Often, in fact daily, I am presented with many facts emerging or known on the subject of ME and association thereof. Much is widely posted, and I am pleased to receive it, however I received the following from Christine Douglas and not knowing how much this will get around, I will also post it here and if anyone has any further comments or knowledge on Christine's subject, I would appreciate hearing from you.

Also, we are now completing the proposal and budget, so very soon will know how much moolah we will need! Then it's out to the planet to help raise funds as we are gearing up for a start time of production. There will be much more news on this very soon, but in the meantime we will return to the WPI's opening in Nevada in August, as the Institute and its operators will feature strongly in the story. So return often to catch the updates!

Moving Ahead

There are still many of your stories coming in and we value your time and energy in relating them to us. Thank you so much. We are still looking at them all to make a decision, so if you feel inclined to share your history and future with us, then please share a one sheet report.

We are continuing to be discovered all the time,which means that you are helping spread the word, again thank you. The latest find is the blog of Mindy Kitel's CFS Central do check it out not only for our glowing write up, but the mass of information that she accrues there.

Now we must mention here, judging from some emails that we are receiving, that in no way shape or form can you judge the film from the teaser trailers, or the confirmed interviewees, (which actually means the people in the teasers) we are in the process of development, which means just that. The film will not resemble the teasers, they are there to give the gist of where we are going, but if different paths open then we will explore them. Again, it is the nature of the beast for change to occur in documentary storytelling. We go with the story there is no script or set locations, written in stone. I hope this clears any confusion.


Do keep tuned!

Spanish Translation

Have you see that our two videos have been translated into Spanish! You'll find them on these links.
What About Me? US Promo (Spanish Subtitles)
What About Me? UK Promo (Spanish Subtitles)

Carlos Gonzalez is from Spain. He stepped forward and offered to do this for us! How great is that?! We are touched by the efforts of so many that have sent to video and are doing all they can to have the maximum outreach possible!

Also, thank you for your touching stories. We are reading them all; Please keep them coming. We cannot promise that they all will be featured, but there will be acknowledgment to each one of you when the film is produced. Keep the faith!

So we progress

Thank you all for your great feedback, support and encouragement, since the launch of the new teaser trailer. We are now moving to the detailed research required for the film. We are fortunate to have on board a well experienced researcher Paula Nightingale, who has a long list of documentaries under her belt, aided by Tony Hill with a degree in documentary research, but who became a ME sufferer himself, unable to pursue his career he has generously given the time and energy that he can muster to join us for the film.

Here I would like to make clear, as judging from some comments we are receiving, what we see in the teaser trailers is not necessarily the way we will go forward with the film. They are in place to give the essence of what we will come up with, but the film itself will be a much bigger story, not just a bigger version of the trailers. We hope to deliver a film that will not be overlooked by anyone, whether in the ME community or not, this is being presented to the planet.

We can track how many people are viewing the trailers, and I am delighted to announce that so far we have 39 countries on the count, keep spreading this to all you know, we are aiming this everywhere!

Susan Douglas
susan@digitaldocumentaries.co.uk

The Nature of the Beast

In documentary filmmaking, one never quite knows what you're getting next. We don't have scripts and sets to immerse in as with feature films, and such is the case with this. We will now proceed outside the realm of any fictional book. This story is so vast , we are changing our way forward for production. Therefore although we fully endorse Nasim Marie Jafry's book The State of Me finding it a good read with a great ironic humor to it, we will no longer be stepping into it with a scripted portrayal in our film. Do however give a read if you haven't already, a well told story of the plight of an ME sufferer, available on Amazon.